TUESDAY, JUNE 16 CONFERENCE DAY 1
Keynote Address
8:30 am – 9:15 am
The Right Treatment for the Right Patient at the Right Time: A Perspective on Personalized Cancer Medicine
Marie Davidian, PhD, Professor of Statistics, North Carolina State University
Plenary Session #1
10:30 am – 12:30 pm
Future of Cancer Surveillance
Moderator: Betsy A. Kohler
Speakers:
- Cancer Care Delivery Research and the SEER Program: Challenges and Opportunities
Steven Katz, MD, Professor of Medicine and Health Management and Policy, University of Michigan - Maximizing the Potential of Population-Based Cancer Registries to Inform Cancer Research
Thomas C. Tucker, PhD, Director, Kentucky Cancer Registry, University of Kentucky - Advancing Cancer Research Through a Virtual Pooled Registry
Dennis Deapen, DrPH, Director, Los Angeles Cancer Surveillance Program, University of Southern California - The Draft NAACCR XML Data Standard: Keeping Pace with the New Era in Cancer Research and Surveillance
Eric Durbin, PhD, Director, Cancer Research Informatics, Kentucky Cancer Registry, University of Kentucky
Concurrent Session #1
1:30 pm – 3:00 pm
Section A:
REGISTRY OPERATIONS: CASE ASCERTAINMENT
Moderator: Winny Roshala
01 Finding the Needle in the Haystack – The Clinically Diagnosed Cases
M. Potts, Fred Hutchinson Cancer Research Center
02 Using NPI and ePath to Identify Clinics That Treat or Diagnose Cancer
C. Klaus, North Carolina Central Cancer Registry
03 Quality Control of Alternate Data Sources in the Ontario Cancer Registry
M.J. King, Cancer Care Ontario
04 What Can We Learn About Case Ascertainment from Registries with High Incidence for Either Benign/Borderline Brain or In Situ Breast Cancers?
R.L. Sherman, NAACCR
Section B:
LAUNCHING A NEW ERA OF DATA TRANSMISSION – XML
Moderator: Gary M. Levin
05 Introduction to XML – How it Works and What it Offers Us
R. Pinder, Los Angeles Cancer Surveillance Program
06 Creating Transmitting, and Working with a NAACCR XML File
I. Hands, Kentucky Cancer Registry
07 XML Tools – Examples to Slice, Dice, Load, and Analyze XML Data
F. Depry, Information Management Services, Inc.
Section C:
CANCER SURVIVAL
Moderator: Hannah K. Weir
09 Preview of Registry-Specific and Aggregated Relative Survival Estimates in Cancer in North America
C.J. Johnson, Cancer Data Registry of Idaho
10 To What Extent Do National Wealth and Expenditure on Health Explain World-Wide Variation in Cancer Survival
C. Allemani, London School of Hygiene and Tropical Medicine
11 Lower Mortality Among Married Cancer Patients: How Much of The Effect is Explained by Socioeconomic and Health Insurance Status?
S. Gomez, Cancer Prevention Institute of California
12 Understanding International Disparities in Childhood Leukaemia Survival: A Worldwide Analysis from the CONCORD-2 Study
A. Bonaventure, Cancer Research UK Cancer Survival Group
Section D:
IMPROVING DATA QUALITY
Moderator: Susan T. Gershman
13 Using Cancer Registry Data to Evaluate Breast Cancer Incidence by Subtype
R.L Sherman, NAACCR
14 Completeness and Consistency of WHO Grade Assignment for Brain and Central Nervous System Tumors in the United States, 2004-2011
J. Barnholtz-Sloan, Central Brain Tumor Registry of the United States
15 The Impact of Reporting Practices on State and Local Lip Cancer Rates, or: How Many per Million Depends on the Vermilion
F.P. Boscoe, New York State Cancer Registry
16 Quality Analysis and Coding Recommendations for Prostate Cancer Site Specific Factors, 2004-2012
J. Whitlock, Wayne State University School of Medicine
Section E:
LAUNCHING A NEW ERA OF SURVEILLANCE: BIOMARKERS AND PROGNOSTIC INDICATORS
Moderator: Frances Babcock
17 Determining How to Move Forward with Collection of Prognostic and Predictive Factors Known as CS SSFS
V. Petkov, National Cancer Institute
18 An In-Depth Study of KRAS Biomarker Testing in Colorectal Cancer Patients
A. Rico, CDC
19 Linking Oncotype DX Results to SEER Data and Patient-Report to Assess Challenges in Individualizing Breast Cancer Care
A. Hamilton, Keck School of Medicine
20 Use of the Oncotype DX Assay Among California Breast Cancer Patients – An Analysis of Linked Databases
R.D. Cress, Public Health Institute/Cancer Registry of Greater California
Concurrent Session #2
3:30 pm – 5:00 pm
Section A:
REGISTRY OPERATIONS IMPROVING DATA QUALITY
Moderator: John Keighly
21 Focused Audits – A Novel Approach to Monitoring Data Quality in the Central Registry
C. Moody, California Cancer Registry
22 Assessing the Completeness of Birthplace Information Collected by the California Cancer Registry
L. Liu, Los Angeles Cancer Surveillance Program
23 Cancer Registry of Greater California (CRGC) Identifies Adolescent Cases Considered Lost to Follow Up In Order to Improve Follow Up
G. Halvorson, Cancer Registry of Greater California
24 Understanding and Developing Approaches for Addressing Differential Follow-Up Among Asian and Hispanic Cancer Cases
S. Gomez, Cancer Prevention Institute of California
Section B:
LAUNCING A NEW ERA IN DATA LINKAGE
Moderator: David P. Butterworth
25 Use of Alternate Information to Improve Linkage with the National Death Index (NDI)
E. Miller, Centers for Disease Control and Prevention
26 Linking Cancer Registries and Birth Defects Registries for Clues on Genetic Cancer Risk
G. Copeland, Michigan Cancer Surveillance System
28 Health Status of Florida Cancer Survivors: Linkage of the 1986-2009 National Health Interview Survey (NHIS) with the 1981-2010 Florida Cancer Data System (FCDS)
D.J. Lee, University of Miami
Section C:
CANCER PATTERNS
Moderator: Laura P. Ruppert
29 When will Cancer Become the Leading Cause of Death in the United States?
H. Weir, Centers for Disease Control and Prevention
30 2011 US Burden of Cancer by Race and Ethnicity
J. Lortet-Tieulent, American Cancer Society
31 Changes in Most Common Cancers in Canada
L. Xie, Centre for Chronic Disease Prevention
32 Estimating the Impact of Childhood Cancer in the United States: Years of Life Lived with Disease and Years of Potential Life Lost, 2009
J. Barnholtz-Sloan, Central Brain Tumor Registry of the United States
Section D:
LAUNCHING A NEW ERA OF CANCER STAGING
Moderator: Kim A. Vriends
33 Survey of Users of Staging Data: What Data is Used, What Data Should be Collected?
J. Brierley, Canadian Partnership Against Cancer
34 SEER 2014 Training Assessment for TNM Staging
A-M. Noone, National Cancer Institute
35 Evaluation of TNM Staging Data in a Large Volume of Cancer Pathology Reports Using Automated Data Extraction and Analysis
C. Kosary, National Cancer Institute
36 Discordance and Missing of Staging Information in Cancer Registry Data: Implications for CER in Bladder Cancer
K. Meng, The University of North Carolina at Chapel Hill
Section E:
A NEW ERA IN DATA INTERPRETATION
Moderator: Netta N. Apedoe
37 Changing Incidence of Hodgkin Lymphoma Histologic Subtypes: Risk Factor Trends or Evolving Diagnostic Practice?
S. Glaser, Cancer Prevention Institute of California
38 Evaluation of Completeness of Lymph Node Count in the North American Association of Central Cancer Registries for Selected Cancers
H.M. Sineshaw, American Cancer Society
39 Has Improved Imaging Contributed to Reduced Size at Diagnosis for Stage I Lung Adenocarcinomas?
J.W. Morgan, Loma Linda University School of Public Health
40 Population-Based Testing and Treatment Characteristics for CML
T. Styles, Centers for Disease Control and Prevention
WEDNESDAY, JUNE 17CONFERENCE DAY 2
Plenary Session #2
8:30 am – 9:45 am
Big Data!
Moderator: Lynne Penberthy
Speakers:
- Unleashing “Big Data” in Oncology
Robert Green, MD MSCE, Vice President of Clinical Strategy, Flatiron Health, Inc. - Big Data Infrastructure for Cancer Outcomes
Anne-Marie Meyer, Faculty Director, ICISS, UNC
Concurrent Session #3
10:00 am – 11:30 am
Section A:
REGISTRY OPERATIONS LAUNCHING A NEW ERA IN QUALITY IMPROVEMENT
Moderator: Cheryl Moody
41 A New Era of Data Quality Assurance and Process Improvement
W. Roshala, PHI/Cancer Registry of Greater California, Sacramento
42 Remedy to Reduce Death Certificate Only Cases
S. Radhakrishnan, North Carolina Cancer Registry
43 A Review of 2012 Diagnosis Year Cases Submitted from Seven Pathology Laboratories in Illinois
L. Koch, Illinois State Cancer Registry
44 Engaging Regional Cancer Centre Healthcare Professionals in Identifying Cancer Surveillance Informational Needs
N. Solimani, Cancer Care Ontario
Section B:
PROJECTIONS, PREVALENCE AND PARTITIONS
Moderator: Brenda K. Edwards
45 Early Estimates of SEER Cancer Incidence for 2012
D.R. Lewis, National Cancer Institute
46 Projecting Cancer Prevalence: Finding the Best Methods For Ontario’s Cancer System Planning
D. Nishri, Cancer Care Ontario
47 Use of Incidence-Based Mortality (IBM) Tool to Partition Trends in Mortality by Tumor Subtypes: Application to Non-Hodgkin Lymphoma (NHL) Cancer
N. Howlader, NCI/NIH
48 Reducing Confounding Bias in Registry-Linked Data Through Propensity Score Methods
Y.K. Chang, Lineberger, UNC-CH
Section C:
LAUNCHING A NEW ERA IN GEOGRAPHIC ANALYSIS
Moderator: Recinda Sherman
49 Assessing Fitness for Use of Two Indicators of the Rural-Urban Environment in the NAACCR Data Files
K.A. Henry, Temple University
50 County Measures and Cancer Survival for Lung and Colorectal Cancer in Appalachian Kentucky, Ohio and West Virginia
B. Huang, University of Kentucky
51 Mapping with Cancer, Demographic and Behavioral Risk Data
C. Schmaltz, Missouri Cancer Registry and Research Center
52 Are Distance Based on Addresses Better than ZIP Codes for Assessing Geographic Access to Cancer Treatment?
T. Kuo, LCCC, UNC-CH
Section D:
LAUNCHING A NEW ERA IN CANCER CONTROL
Moderator: Jeannette Jackson-Thompson
53 Building Capacity for Cancer Control Action: the IARC Regional Hub for Cancer Registration in the Caribbean
D. Martin, National Cancer Institute
54 Profiling Cancer Within Select Ontario Aboriginal Reserves
M.V. Prummel, Prevention and Cancer Control, Cancer Care Ontario
55 Smoking Behavior Among Adult Childhood Cancer Survivors: What Are We Missing?
T. Asfar, Department of Public Health Sciences, University of Miami Miller School of Medicine
56 Use of Patient Focus Group Data with Cancer Registry Data to Support PersonCentered System Performance Reporting
K. Tran, Canadian Partnership Against Cancer
Section E:
NEW ERA IN RESEARCH: CERVICAL CANCER SURVEILLANCE
Moderator: Deirdre B. Rogers
57 Surveillance of Cervical Cancer Precursors in Four U.S. Central Cancer Registries
M. Watson, Division of Cancer Prevention and Control, Centers for Disease Control and Prevention
58 Audit of Case Finding Completeness and Accuracy in Four Registries Collecting Cervical Cancer Precursors
M. Watson, Division of Cancer Prevention and Control, Centers for Disease Control and Prevention
59 HPV Genotype Prevalence Among Kentucky Women Diagnosed with Pre-Invasive Cervical Cancer: Using the Central Cancer Registry as a Population-Based Virtual Tissue Repository
T. Tucker, University of Kentucky
60 Leveraging Electronic Pathology Reporting in Cervical Cancer Epidemiology: Determinants of Invasive Diagnoses in Kentucky
E. Durbin, Kentucky Cancer Registry
THURSDAY, JUNE 18CONFERENCE DAY 3
Concurrent Session #4
8:00 am – 9:30 am
Section A:
REGISTRY OPERATIONS IMPROVING MANAGEMENT
Moderator: Marta Induni
61 The Last Frontier; True Modernization of a Cancer Registry’s Electronic Communication
K. Ziegler, Cancer Registry of Greater California
62 Using SEER*Educate Management Reports to Target Training Needs
M. Potts, Fred Hutchinson Cancer Research Center
63 Better Communication Starts with Team Work
N. Lozon, Metropolitan Detroit Cancer Surveillance System
64 Benefits and Challenges of Going Paperless: Implementation of a Document Management and Workflow System
C. Hamma, Public Health Institute / Cancer Registry of Greater California
Section B:
MEANINGFUL USE
Moderator: Joseph Dean Rogers
65 Meaningful Use of Electronic Health Records: Electronic Physician Reporting to State Cancer Registries
W. Blumenthal, CDC
66 North Carolina Central Cancer Registry (NCCCR) and Meaningful Use Stage 2 Cancer Reporting
N. Salahuddin, NC DHHS
67 Meaningful Use Stage 3: Potential Impact on Central Cancer Registries
J. Jackson-Thompson, University of Missouri (MU) School of Medicine Department of Health Management & Informatics
68 Putting it into Practice: Challenges Implementing MU2 in Florida
M. Hernandez, Florida Cancer Data System
Section C:
SURVIVAL METHODS
Moderator: Christopher Johnson
69 The Impact of the “Presumed Alive” Follow-up Method on Survival Rates by Race/Ethnicity and National Origin in New York
M.J. Schymura, New York State Cancer Registry
70 Constructing Life Tables for Global Surveillance of Cancer Survival: Experience from the CONCORD-2 Study
D. Spika, Cancer Research UK Cancer Survival Group, Department of Non-Communicable Disease Epidemiology, London School of Hygiene and Tropical Medicine
71 Multiple Mediation Analysis with Survival Data: An Application to Analyze Racial Disparity in Stage III Colon Cancer Survival
M.C. Hsieh, Louisiana Tumor Registry and Epidemiology Program, School of Public Health, LSU Health Sciences Center
72 Development of New NPCR SAS Tool for Population-Based Cancer Relative Survival Analysis
K. Zhang, ICF International
Section D:
LAUNCHING A NEW ERA IN SURVEILLANCE AND CANCER OUTCOMES
Moderator: David K. O’Brien
73 Using Enhanced Registry Data for Clinical Management and Cancer Care V.W. Chen, Louisiana Tumor Registry and Epidemiology Program, School of Public Health
Louisiana State University Health Sciences Center
74 Variation In Staging and Treatment of Rectal Cancer by National Cancer Institute (NCI) Designation and Medical School Affiliation: Analysis of Surveillance, Epidemiology and End Results (SEER)-Medicare Data
M.E. Charlton, University of Iowa College of Public Health
75 Prevalence and Characteristics of Cancer Patients Seeking Care from Multiple Facilities, San Francisco Bay Area of California, 2010-11
S. Glaser, Cancer Prevention Institute of California
76 Quality of Care and Outcomes Among Cancer Patients in California According to Source of Health Insurance
A. Parikh-Patel, California Cancer Reporting and Epidemiologic Surveillance (CalCARES) Program, Institute for Population Health Improvement, UC Davis Health System
Section E:
CANCER EPIDEMIOLOGY
Moderator: Kathy Cronin
77 Increasing Trends of Kidney and Renal Pelvis Cancer in California
A. Parikh-Patel, California Cancer Reporting and Epidemiologic Surveillance (CalCARES) Program
78 Trends in Early Stage Hepatocellular Carcinoma, California 1988-2011
D. Ewing, Cancer Registry of Greater California
79 Breast Cancer Among the U.S. Male Population
R. Wilson, CDC/NCCDPHP/DCPC/CSB
80 Stomach Cancer in North America: Geographic Variation in Net Survival by Age And Sex
H. Carreira, Cancer Research UK Cancer Survival Group
Plenary Session #3
10:00 am – 11:30 am
Launching a New Era in Registry Operations
Moderator: Maureen MacIntyre
Speakers:
- NCI SEER Transition Tools – Moving to More Modern Technologies
Jean Cyr, Assistant Project Manager and Senior Systems Analyst, Information Management Systems, Inc. - Launching a New Era in Registry Operations: Survivorship Care Plans
Randi Rycroft, CTR Director, Colorado Central Cancer Registry - Data Item Consolidation
Frances Ross, CTR, Director of Registry Operations, Kentucky Cancer Registry - The New Death Clearance Manual
Susan Bolick, MSPH, CTR, Director, South Carolina Cancer Registry - Reporting Delay Adjustment for NAACCR Registries
Eric Feuer, PhD, Branch Chief, Surveillance Research Program, National Cancer Institute
Concurrent Session #5
1:00 pm – 2:30 pm
Section A:
ISSUES OF RACE
Moderator: Jim Martin
81 Plans for Multi-Race Reporting of Death Data
E. Arias, CDC/NCHS
82 Feasibility of Multi-Race Reporting for Cancer Incidence
D. G. Stinchcomb, Westat
83 Statistical Issues of Bridging Single-Race and Multiple-Race Reports in the Population Data
M. Yu, National Cancer Institute
84 Clarifying Race Reporting in New Jersey
L. Paddock, New Jersey State Cancer Registry
Section B:
LAUNCHING A NEW ERA OF STANDARDS AND AUTOMATION
Moderator: Lori Havener
85 Automating the Multiple Primary Rules
P. Ransdell, Kentucky Cancer Registry
86 Real Time Discrete Data Elements from Synoptic Radiology Reports to Enhance Cancer Registry Operations
G. Lee, Cancer Care Ontario
87 Comparing a Standard (NAACCR Volume V) with a Draft Standard (HL7 Version 2.5.1 Implementation Guide: ELR Reporting to Public Health, Release 2)
J.N. Harrison, New York State Cancer Registry
88 Use of Integrating the Healthcare Enterprise (IHE) Standardized Data Capture (SDC) Content Profile to Exchange Standardized Data Between Clinical Care and Cancer Registries
S. Jones, Centers for Disease Control and Prevention
Section C:
CANCER CLUSTERS AND ANALYTIC TOOLS
Moderator: Bruce Riddle
89 Lung Cancer Incidence in a Rural Montana County Undergoing Asbestos Screening, 2000-2008
L. Williamson, Montana Department of Public Health and Human Services
90 Investigation of a Possible Link between Pollution from WWII Military Facilities and Cancer in Yakutat, Alaska
D.K. O’Brien, Alaska Cancer Registry
91 Confidence Intervals for Rate Ratios Between Geographic Units
L. Zhu, National Cancer Institute
92 Model-Based Small Area Estimation for Cancer Screening and Smoking Related Behaviors
B. Liu, National Cancer Institute
Section D:
MOVING TOWARD IMPROVED SURVEILLANCE OF TREATMENT AND OUTCOMES
Moderator: Amanda Shaw
93 Nonclinical Factors Associated with Premature Termination of Adjuvant Chemotherapy for Stage I-III Breast Cancer
X. Wu, LSU Health Sciences Center
94 The Effect of Comorbidity on the Use of Adjuvant Chemotherapy and Type of Regimen for Resected Stage III Colon Cancer Patients
M.C. Hsieh, Louisiana Tumor Registry and Epidemiology Program
95 “First in Flight” or “When Pigs Fly” – Can Cancer Registries Play a Critical Role at the National Level in Studying Cancer as an Adverse Outcome from Drug Treatments?
K. Midkiff, RTI Health Solutions
96 Long-term Cancer Surveillance: Five-Year Update for the Forteo Patient Registry Data Linkage Study
D. Harris, RTI Health Solutions
Closing Plenary Session #4
3:00 pm – 4:00 pm
Intersection of Public Health Surveillance and Clinical Medicine
Moderator: Jill MacKinnon
Speakers:
- Electronic Health Records: The Intersection of Public Health Surveillance and Clinical Medicine
Lisa Richardson, MD, MPH, Director, CDC Division of Cancer Prevention and Control, Centers for Disease Control and Prevention - Leveraging State Cancer Registries to Measure and Improve Quality of Cancer Care
Dennis Deapen, DrPH, Director, Los Angeles Cancer Surveillance Program, University of Southern California